10 Years of my life wasted...
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Newty182




Posts: 10798
Location: UK
PostPosted: Thu, 1st Aug 2013 18:00    Post subject: 10 Years of my life wasted...
So a few people here might know that I suffer from depression and anxiety. Well, as of today I have found out that really I have had cardiac arrhythmia for 20 years+ and the 'panic attacks' were not panic attacks at all and could have potentially been life threatening. Doctors failed to diagnose it. I say 10 years wasted as that is from the time when it really started to concern me and I was back and fourth to the hospital and GP asking them to find out what was wrong with me. I remember telling them all of my symptoms (which btw fit perfectly with cardiac arrhythmia or SVT) and how I felt like "I was dying on the inside" and how I thought something was really wrong with me and wanted them to find out what was wrong and fix it. They said it's panic attacks and maybe depression and gave me SSRI's, which did help kind of.

Anyway this is kind of good and bad news for me. Because if some meds or an operation can make me feel well again then that's good, but then on the other hand this could have been done years ago and I wouldn't have wasted so much of my life.

Oh.. My heart was regularly pausing for 3-4 seconds, then one big thud and then really fast beating. Not exaggerating, checked myself when having the attacks and the ambulance crew did too against their machines where you could hear the pauses, I honestly thought I might die. Felt like I was going to pass out several times.


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Saner




Posts: 6876
Location: Uk
PostPosted: Thu, 1st Aug 2013 18:05    Post subject:
As you say atlewst you now have a solid good diagnosis.


You can )nly look forward Smile


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tw1st




Posts: 6112
Location: New Jersey
PostPosted: Thu, 1st Aug 2013 18:14    Post subject:
damn, that's rough, but like saner said, at least now you have a actual diagnosis and can properly get treated for it.

When you say the doctor failed to diagnose, did they just say they were panic attacks or were you completely misdiagnosed with something else? Pretty common for something like that to happen.


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Newty182




Posts: 10798
Location: UK
PostPosted: Thu, 1st Aug 2013 18:34    Post subject:
Yeah hopefully this will all get sorted now and I can try to get back to how I used to be.

My GP did give me an ECG once, that must have lasted like 30 seconds or so but when I had it done I felt completely normal, so yeah he said it was probably just panic attacks. If I had been given a 48 or even 24 hour ECG they would have saw there was a bigger problem than panic attacks. So I just assumed all this crap with my heart going weird all the time was nothing more than panic attacks. I learnt by trial and error how to stop them, methods that are written on Wiki for SVT.

Also before it probably wasn't that life threatening, though it was really horrible and always playing on my mind wherever I was, but the way I was yesterday, I'm not so sure.

I've only read up a bit as my phone battery was dead. I need to do a lot of reading.


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Morphineus
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Posts: 24883
Location: Sweden
PostPosted: Thu, 1st Aug 2013 18:36    Post subject:
I'm really glad they find out what was wrong, Would have been nicer sooner, but they found it and that is important Smile


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tainted4ever
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Posts: 11336

PostPosted: Thu, 1st Aug 2013 18:43    Post subject:
Better the demon you know than the demon you don't. Don't get hung up over the 10 years wasted; focus on your future Smile And good luck.


Sense Amid Madness, Wit Amidst Folly
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tonizito
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Posts: 51324
Location: Portugal, the shithole of Europe.
PostPosted: Thu, 1st Aug 2013 19:34    Post subject:
I think I have that too, but in my case I'm always near ~90-100 bpm per minute, no stops afaik Very Happy

Aside from a small depression for years now, which I mostly blame on the status of the country and my lone wolf nature, I'm mostly without any negative effects from it AFAIK.


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i guess thouth if without a legit key the installation was rolling back we are all fucking then
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deelix
PDIP Member



Posts: 32062
Location: Norway
PostPosted: Thu, 1st Aug 2013 19:47    Post subject:
My grandmother have had it since she was a teen; she's 76 now Smile
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Newty182




Posts: 10798
Location: UK
PostPosted: Thu, 1st Aug 2013 21:22    Post subject:
So, operation or no operation?

If everything goes well with the procedure then my heart should work fine and no side effects that you get with tablets. Problem is in 1-2% it goes wrong and you end up having to use a pacemaker for the rest of your life, or they cut in the wrong place and you bleed... And I'm pretty sure that would be real bad lol.

@tonizito Mine didn't used to be too bad when I was younger. Actually no, it was manageable, up until the last week really... I wish I knew what changed.

@deelix Living into my 60's would do me just fine Smile


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deelix
PDIP Member



Posts: 32062
Location: Norway
PostPosted: Thu, 1st Aug 2013 21:39    Post subject:
That kind of operation would involve a great risk, wouldn't it? But as you said, if those "fake panic attacks" actually could be fatal, id might consider it.
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PumpAction
[Schmadmin]



Posts: 26759

PostPosted: Thu, 1st Aug 2013 22:10    Post subject:
Wow what a shitty situation newty! I wish you all the best though, now that you know what's actually wrong. So no psychological component at all?


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Newty182




Posts: 10798
Location: UK
PostPosted: Thu, 1st Aug 2013 22:21    Post subject:
I still need to see the cardiologist again in 3 months and then my GP next week to get a better idea of what is going on, everything was so rushed in the hospital.

PumpAction wrote:
So no psychological component at all?

One doctor said yes to that but the cardiologist said no. I noticed over the years that more likely than not it was some kind of vibration on my heart that set it off and not nervousness or any kind of panic.


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StrEagle




Posts: 14059
Location: Balkans
PostPosted: Thu, 1st Aug 2013 22:25    Post subject:
1-2% is negligible - do et!

the profit is huge!


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Newty182




Posts: 10798
Location: UK
PostPosted: Thu, 1st Aug 2013 22:31    Post subject:
From Steamgifts wins..
Quote:
0.05% chance to win
Laughing

But yeah the odds are low

Edit: How rude, I didn't say thanks for the well wishes. Cheers guys Smile


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M4trix




Posts: 9226
Location: Croatia, Adriatic coast (I can see ixi from here)
PostPosted: Thu, 1st Aug 2013 22:57    Post subject:
Maybe you have PVC's or PAC's which are 99% benign. It feels like your heart skips the beat which is actually a premature heart beat. It's a strong thump in your chest and a compensatory pause follows. Sometimes a cell in your heart, which is not part of the hearts electrical system, fires an electric pulse and this causes a premature heart contraction. The heart pumps in more blood than usual and you feel like a strong bang in your chest. It's unpleasant but not harmful. I have this for the last 5-6 years and there is no cure for it. I've seen couple of cardiologists and they told me the same. The trigger is sometimes stress, cola, full stomach, gas, lying on my left side etc but I've managed to live with it. Most important thing is to do all the tests, ultra sound, ergometry, 24 hours holter. If this turns out OK then welcome to the club! Very Happy


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moosenoodles




Posts: 18411

PostPosted: Thu, 1st Aug 2013 23:03    Post subject:
my old man has this had is since his early 20's and complained as u did constantly and nothing was found, was not till he was 60 that they found out what it was. Very Happy

they gave him some milky white stuff in syringe ( basically kills you ) then they restart the heart with the old electrical kit and hope it gets back to sync, unfortunatley even though it was risky he did that and it didnt work Very Happy they did it 3 times, so he was dead in essence 3 times trying to get it fixed but they said his age was against him and he would have to live with it till he dies ..

if dealt with earlier it would of been correctable they said, so go with that Very Happy leave it and suffer or get shit done early and hope it settles itself.
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M4trix




Posts: 9226
Location: Croatia, Adriatic coast (I can see ixi from here)
PostPosted: Thu, 1st Aug 2013 23:36    Post subject:
Oh, and this, more you panic more PACs will jump in and there is your vicious circle! Sad


Made in China is like a box of chocolates. You never know what you're gonna get.
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Newty182




Posts: 10798
Location: UK
PostPosted: Fri, 2nd Aug 2013 00:07    Post subject:
Just read up on PVC's and PAC's and this: "heart skips the beat which is actually a premature heart beat. It's a strong thump in your chest and a compensatory pause follows." is exactly what I did have most of last week and I have had them palpitations for years, but then yesterday it was much much more worse than that, the pauses were literally 3-4 seconds (count the seconds, it's a long time), I was losing conciousness from lack of blood flow. After the thump where my heart started beating again my heart was racing at 140bpm. I was diagnosed with SVT at my GP's office, but then the cardiologist said it's not SVT and is cardiac arrhythmia, which is confusing because it can mean a lot of things. They are sending all the information to my GP so I should find out everything next week, hopefully.

Oh I am also waiting for a 24 hour ECG appointment.


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MAD_MAX333
Moderator



Posts: 7020
Location: Toronto, Canada...eh
PostPosted: Fri, 2nd Aug 2013 00:17    Post subject:
hey man you found out whats wrong, ur still alive and will continue to be alive when you fix the issue. this is all positive. its all an exprience. Is does sound like a crazy condition and scary indeed.

You know more and more people are using those WebMD and those apps on the iphone and android where u describe ur symptoms and doctors from all over the world read it and give their ideas. This would have been a good candidate for refferal to that stuff.
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Newty182




Posts: 10798
Location: UK
PostPosted: Fri, 2nd Aug 2013 00:28    Post subject:
You're right, it is good that I now know.

I wouldn't have thought about using WebMD now as I had just assumed that I was having panic attacks and that was it.

Edit: Actually I might try that WebMD to see what people think about me being diagnosed with depression and if that was just BS too.. Smile


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ixigia
[Moderator] Consigliere



Posts: 65039
Location: Italy
PostPosted: Fri, 2nd Aug 2013 01:59    Post subject:
Damn Newty, I'm sorry Sad
This news has such a strange bittersweet taste..but I agree with the Humps. I'd definitely look on the bright side here (I know, it's hard..very), because even if it is true that you've lost many years trying to struggle with an invincible -and invisible- enemy, it is also true than now you can finally see the light at the end of the tunnel.

You're still young and fixing the problem can guarantee you a long life full of happiness. Razz We have all the tools and tech to minimize the risks today, and I think that your approach is absolutely the right one.

I'd be scared shitless of course (I'm a pussy Very Happy), but I'd do the same...no doubts about that. You have all my support Newt! Razz Good luck mate and keep us updated^^
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Perry Rhodan




Posts: 467

PostPosted: Fri, 2nd Aug 2013 13:03    Post subject:
good advice would be to see more than one doctor, see what the others tell you about the procedure, maybe one of them knows about something new the other hasn't heard of yet or something, can't hurt to check. "Get a second opinion" Smile
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M4trix




Posts: 9226
Location: Croatia, Adriatic coast (I can see ixi from here)
PostPosted: Fri, 2nd Aug 2013 16:06    Post subject:
Newty182 wrote:
I was losing conciousness from lack of blood flow.


Have you fainted (syncope) or was it a near fainting situation? If you panicked then fainting is very common. Scratch Head


Made in China is like a box of chocolates. You never know what you're gonna get.
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tonizito
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Posts: 51324
Location: Portugal, the shithole of Europe.
PostPosted: Fri, 2nd Aug 2013 16:33    Post subject:
Newty182 wrote:
I was losing conciousness from lack of blood flow.
Where was all the blood going? Devil Troll


boundle (thoughts on cracking AITD) wrote:
i guess thouth if without a legit key the installation was rolling back we are all fucking then
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Newty182




Posts: 10798
Location: UK
PostPosted: Fri, 2nd Aug 2013 17:13    Post subject:
M4trix wrote:
Newty182 wrote:
I was losing conciousness from lack of blood flow.


Have you fainted (syncope) or was it a near fainting situation? If you panicked then fainting is very common. Scratch Head


I don't think it was from panicking. I had one of them things, whatever they are, when I got to my GP's office and I knew (or at least thought) that I would be safe there if anything happened. That was like 5 mins before he told me it is SVT. My vision started to go blurry, sound was getting quieter, all senses were fading.

@ixigia

@tonizito Laughing


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Parabolica




Posts: 295
Location: Archimedes' equidistant
PostPosted: Sat, 3rd Aug 2013 17:51    Post subject:
M4trix wrote:
...I have this for the last 5-6 years and there is no cure for it. I've seen couple of cardiologists and they told me the same. The trigger is sometimes stress, cola, full stomach, gas, lying on my left side etc but I've managed to live with it. Most important thing is to do all the tests, ultra sound, ergometry, 24 hours holter. If this turns out OK then welcome to the club! Very Happy


Same exact diagnosis for me as well. been living with it for 10+ years.


In life, ones success is not determined by their wealth, but by how many attend their funeral..
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Newty182




Posts: 10798
Location: UK
PostPosted: Sat, 3rd Aug 2013 18:01    Post subject:
Parabolica wrote:
M4trix wrote:
...I have this for the last 5-6 years and there is no cure for it. I've seen couple of cardiologists and they told me the same. The trigger is sometimes stress, cola, full stomach, gas, lying on my left side etc but I've managed to live with it. Most important thing is to do all the tests, ultra sound, ergometry, 24 hours holter. If this turns out OK then welcome to the club! Very Happy


Same exact diagnosis for me as well. been living with it for 10+ years.


What were you diagnosed with, disease or disorder name?

Same question @M4trix


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Parabolica




Posts: 295
Location: Archimedes' equidistant
PostPosted: Sat, 3rd Aug 2013 18:37    Post subject:
Newty182 wrote:
Parabolica wrote:
M4trix wrote:
...I have this for the last 5-6 years and there is no cure for it. I've seen couple of cardiologists and they told me the same. The trigger is sometimes stress, cola, full stomach, gas, lying on my left side etc but I've managed to live with it. Most important thing is to do all the tests, ultra sound, ergometry, 24 hours holter. If this turns out OK then welcome to the club! Very Happy


Same exact diagnosis for me as well. been living with it for 10+ years.


What were you diagnosed with, disease or disorder name?

Same question @M4trix


My Cardio just said I had a very strong heart but had a Heart Arrhythmia and I have to live with it. <- 13 years ago.

But all summer long this year I have had the feinting feelings like you described. I went in to have it checked and ended up having high blood pressure. I now take Lisinopril and my blood pressure has gone down, and I no longer have feinting feelings when my heart beats funky.

I am waiting for another Cardio to contact me to set up an appt. to have another battery of tests done since it's been 13 years.


In life, ones success is not determined by their wealth, but by how many attend their funeral..
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M4trix




Posts: 9226
Location: Croatia, Adriatic coast (I can see ixi from here)
PostPosted: Sat, 3rd Aug 2013 18:43    Post subject:
Newty182 wrote:
Same question @M4trix


Premature atrial contractions or extrasystoles. No special treatment. The doc gave me a beta blocker, Propranolol, but made the condition worse since the beta blocker lowers your heart rate and in my case the PACs jumps in more frequently. So I throwed them away. Xanax helped a lot but since then I don't panic anymore and I can live with it. It doesn't bother me like before. I've read a lot about extrasystoles and everyone mentions the Vagus nerve and its major role in connecting the guts, heart with the brain. When it's over-stimulated, it can cause lower, higher heart rate, PACs, PVCs. That's probably why I have more PACs after eating spicy food, after drinking beverages like Pepsi. In fact, when PACs begin then I'm 100% sure that my stomach acid will come up to my throat after half an hour! Wink Also I had GERD episodes since PACs started. Coincidence? Nope. Anyways, just do all the tests. I think it's nothing serious. Wink


Made in China is like a box of chocolates. You never know what you're gonna get.
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Newty182




Posts: 10798
Location: UK
PostPosted: Sat, 3rd Aug 2013 19:04    Post subject:
Cheers for the replies. Were you guys offered the Radiofrequency catheter ablation treatment operation?

I'm taking sotalol now and things feel better with them. I have a blood pressure monitor that I bought a while ago and it is able to detect heart beat irregularities, and since taking these beta blockers my blood pressure has lowered to normal rates and I don't get the little symbol on the screen for the heart beat irregularities any more. I really should have paid more attention to that symbol lol.

Got an appointment to get a 48h ECG to take home at the end of the month. Then another few months to see the cardiologist.


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